Serious prenatal diagnosis of a disease in an unborn child
Conditions
Interventions
Group 1: Parents who meet the following inclusion criteria:
• Parents with a child who was diagnosed prenatally with a condition and has increased care needs postnatally, and who were discharged from
Sponsors
Universitätsklinikum Düsseldorf, Versorgungsforschung im Kindes- und Jugendalter
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: • Parents with a child who was diagnosed with a condition before birth and has increased care needs after birth, and whose discharge after birth was no more than one year ago (from the date of recruitment) OR • Parents whose prenatally diagnosed child has died and was not discharged home after birth, and the death of the prenatally diagnosed child occurred no more than one year ago (from the date of recruitment) • Willingness to participate in an interview after reading the participant information, • Written informed consent to participate in the study, • Sufficient knowledge of the German language to participate in the interview.
Exclusion criteria
Exclusion criteria: • Failure to meet the above criteria • Refusal to participate in the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The needs, requirements and burdens of parents with a child diagnosed with a serious prenatal condition are assessed after discharge following the birth by means of narrative interviews. | — |
Countries
Germany
Contacts
Public ContactMaren Gall
Universitätsklinikum Düsseldorf, Versorgungsforschung im Kindes- und Jugendalter
Outcome results
None listed