Primary care of patients with cluster headache

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00037340

Enrollment

128

Registered

2025-07-03

Start date

2025-09-30

Completion date

Unknown

Last updated

2026-06-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G44.0

Interventions

Group 1: The aim of the study is to investigate the primary care of patients with cluster headache. Both the perspective of general practitioners and of patients will be taken into account. For this p

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Patients with cluster headache

Exclusion criteria

Exclusion criteria: Insufficient intellectual or linguistic ability to complete the questionnaire in German.

Design outcomes

Primary

Measure	Time frame
The first survey captures various target parameters related to the primary care of patients with cluster headache. These include: the structure of primary care, scope of care, diagnostic procedures, general practitioners’ level of knowledge, satisfaction with the care situation, challenges and opportunities for improvement, and information needs. The second survey focuses on the patients’ perspective and collects the following target parameters: diagnostic history, current treatment, primary care received, satisfaction with primary care, potential areas for improvement in care, and possible influencing factors on care and satisfaction (such as disease burden, individual health behavior, and demographic aspects). These target parameters enable a comprehensive analysis of both the general practitioners’ perspective and patient experiences, in order to identify potential areas for improvement in the care of cluster headache.	—

Measure

Time frame

The first survey captures various target parameters related to the primary care of patients with cluster headache. These include: the structure of primary care, scope of care, diagnostic procedures, general practitioners’ level of knowledge, satisfaction with the care situation, challenges and opportunities for improvement, and information needs. The second survey focuses on the patients’ perspective and collects the following target parameters: diagnostic history, current treatment, primary care received, satisfaction with primary care, potential areas for improvement in care, and possible influencing factors on care and satisfaction (such as disease burden, individual health behavior, and demographic aspects). These target parameters enable a comprehensive analysis of both the general practitioners’ perspective and patient experiences, in order to identify potential areas for improvement in the care of cluster headache.

—

Secondary

Measure	Time frame
No subdivision into primary and secondary.	—

Countries

Germany

Contacts

Public ContactKristin Kieselbach

Interdisziplinäres Schmerzzentrum des Universitätsklinikum Freiburg

kristin.kieselbach@uniklinik-freiburg.de+49 761 270 50200

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jun 29, 2026