International Clinical Data Registry for Patients with Rare Embryonal or Sarcomatous CNS Tumors of the German Society for Pediatric Oncology and Hematology (GPOH)

International Clinical Data Registry for Patients with Rare Embryonal or Sarcomatous CNS Tumors of the German Society for Pediatric Oncology and Hematology (GPOH) - CNS-InterREST GPOH

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00037091

Enrollment

100

Registered

2025-06-02

Start date

2025-06-15

Completion date

Unknown

Last updated

2025-10-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Rare embryonal and sarcomatous brain tumors in children

Interventions

Group 1: Clinical Registry

Eligibility

Sex/Gender

All

Age

No minimum to 18 Years

Inclusion criteria

Inclusion criteria: Diagnosis of a rare embryonal or sarcomatous CNS tumor confirmed by reference neuropathology for patients age 0-18 years Signed informed consent by patient and/or caregiver

Exclusion criteria

Exclusion criteria: Diagnosis of another brain tumor

Design outcomes

Primary

Measure	Time frame
Establishing a molecular and clinical data base for rare embryonal and sarcomatous CNS tumors of childhood	—

Secondary

Measure	Time frame
Establishing a molecular and clinical data base for rare embryonal and sarcomatous CNS tumors of childhood	—

Countries

Germany

Contacts

Public ContactBarbara von Zezschwitz

Klinik für Pädiatrie mit SP Onkologie und Hämatologie, Charité Universitätsmedizin Berlin

barbara.zezschwitz@charite.de+49 30 450 666005

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026