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Experiences and Needs of Caregivers in Infant Stem Cell Transplantation

Experiences and Needs of Caregivers in Infant Stem Cell Transplantation

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00036923
Enrollment
6
Registered
2025-06-20
Start date
2025-05-13
Completion date
Unknown
Last updated
2025-10-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Psychological burden of caregivers during the stem cell transplantation of their child

Interventions

Group 1: For this study interviews will be conducted with caregivers of children who underwent stem cell transplantation under the age of three. The participants will also be filling out a short sympt

Sponsors

Universitätsklinikum Leipzig AöR
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: Participant was the patients main caregiver during most of the treatment process (transplantation). The patient was 3 years or younger at the time of transplantation.

Exclusion criteria

Exclusion criteria: The participant does not speak German fluently enough to participate in the interview independently. The child underwent transplantation before April 2022.

Design outcomes

Primary

MeasureTime frame
There is no primary outcome in the traditional sense. The goal of the study is to reconstruct and analyze the experiences of caregivers and to derive needs, preferences and priorities for different stakeholders from that.

Secondary

MeasureTime frame
Suggestions for adaptation for an improved psychosocial care for caregivers

Countries

Germany

Contacts

Public ContactJanie Henkel

Universitätsklinikum Leipzig AöR

Janie.Henkel@medizin.uni-leipzig.de+49 341 97 26217

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026