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Measuring and enhancing participation of children with chronic conditions and disabilities – Psychometric evaluation of the Participation and Environment Measure for Children and Youth and application in collaborative care planning for children with chronic conditions and disabilities

Measuring and enhancing participation of children with chronic conditions and disabilities – Psychometric evaluation of the Participation and Environment Measure for Children and Youth and application in collaborative care planning for children with chronic conditions and disabilities

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00036766
Enrollment
500
Registered
2025-07-22
Start date
2025-11-03
Completion date
Unknown
Last updated
2026-03-30

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Chronic conditions and disabilities in children and adolescents

Interventions

Group 1: Name: Online Survey (Psychometric Evaluation) Type: Cross-sectional study Description: Parents of children aged 5-17 years (with and without chronic conditions) complete an online questionnai

Sponsors

UNIVERSITÄTSKLINIKUM FREIBURG, Kinder- und Jugendklinik, Klinik für Neuropädiatrie und Muskelerkrankungen
Lead Sponsor

Eligibility

Sex/Gender
All
Age
5 Years to 17 Years

Inclusion criteria

Inclusion criteria: Sufficient knowledge of the German language

Exclusion criteria

Exclusion criteria: No sufficient knowledge of the German language

Design outcomes

Primary

MeasureTime frame
Phase 1: Validity and Reliability of the German Version of the PEM-CY Phase 2: Feasibility and Acceptability of PEM-CY as a Counseling Tool in Clinical Practice

Secondary

MeasureTime frame
User experiences of healthcare providers and parents regarding the practicality, acceptability, and perceived impact of the PEM-CY in clinical counseling.

Countries

Germany

Contacts

Public ContactAnne Geweniger

UNIVERSITÄTSKLINIKUM FREIBURG, Kinder- und Jugendklinik, Klinik für Neuropädiatrie und Muskelerkrankungen

anne.geweniger@uniklinik-freiburg.de+49 761 270 43735

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Apr 4, 2026