C80.9
Conditions
Interventions
Group 1: Qualitative interviews will be conducted with various stakeholders with the aim of finding out about their experiences and perceptions with regard to patient participation in research project
A2) Patients or patient representatives who have expertise in other disease contexts (e.g. HIV/ AIDS, chronic pain, mental illness)
Group 2: B) Oncology patients who have not yet been involved in research projects
Group 3: C) Researching physicians, non-physician researchers, study nurses and research coordinators from various NCT sites and, if applicable, other clinical research institutions
Group 4: D) Representatives from institutions that provide fundings for research.
Sponsors
Nationales Centrum für Tumorerkrankungen (NCT)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Adults =18 years of age - Ability to give consent - Relation to cancer (group A1 and B) or other illnesses in the case of group A2 (affected by illness themselves and/or a relative of a sick person) - Good knowledge of the German language
Exclusion criteria
Exclusion criteria: - Children/young people <18 years - Lack of German language skills
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The main objective of the study is to generate insights into which forms of patient participation already exist in the oncological research context and what experiences various stakeholders report regarding those. The main aim is to find out which participation formats are suitable for which clinical research context. The results should provide a basis for developing specific guidelines for improving PPI at the NCT. | — |
Secondary
| Measure | Time frame |
|---|---|
| Another objective of the study is to explore ways of evaluating the quality and impact of participation formats in the clinical research context. In addition to a parallel literature review, this will also be investigated with the help of the qualitative research method used. | — |
Countries
Germany
Contacts
Public ContactEva Winkler
Nationales Centrum für Tumorerkrankungen (NCT) Heidelberg
Outcome results
None listed