I26
Conditions
Interventions
Group 1: Patients diagnosed with pulmonary embolism (PE) who received treatment decisions guided by the involvement of a pulmonary embolism response team (PERT) and participate in the EXPERT DACH-Regi
Sponsors
Universitätsmedizin der Johannes Gutenberg-Universität Mainz
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Participant of the EXPERT DACH-Registry - Ownership of a mobile device
Exclusion criteria
Exclusion criteria: - Unwillingness to complete PROM questionnaires
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Change in patient-reported quality of life over 12 months after hospital discharge for PE patients treated based on PERT decisions, as measured by the PROMIS Global Health v1.2 questionnaire. | — |
Secondary
| Measure | Time frame |
|---|---|
| - Change in dyspnea severity over 12 months, as measured by the PROMIS Dyspnea Severity 10a questionnaire - Change in physical function over 12 months, assessed using the PROMIS Physical Function 4a questionnaire - Change in depression symptoms over 12 months, evaluated using the PHQ-9 questionnaire | — |
Countries
Austria, Germany, Switzerland
Outcome results
None listed