Coping with chronic inflammatory bowel disease (IBD): A qualitative study on the experiences and perspectives of affected patients

Coping with chronic inflammatory bowel disease (IBD): A qualitative study on the experiences and perspectives of affected patients - CED-Cope

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00035974

Enrollment

Registered

2025-01-21

Start date

2025-02-28

Completion date

Unknown

Last updated

2026-03-30

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

K50 K51

Interventions

Group 1: approximately 15 to 20 people with IBD aged 18 and over

qualitative study, non-interventional, one-off guided interview and questionnaires to collect sociodemographic and health-related data (1-2 hours in total)

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: - Confirmed CED diagnosis at least five years ago - 18 years and older, male/female/diverse - capable of giving consent - signed declaration of consent

Exclusion criteria

Exclusion criteria: - Other acute or severe chronic illnesses - insufficient knowledge of the German language

Design outcomes

Primary

Measure	Time frame
The aim is to investigate how patients deal with their IBD and what influence their coping strategies have on the course of the disease as they experience it. -Semi-structured interview guide, additionally: -Questionnaire on socio-demographic and health-related data -Short Inflammatory Bowel Disease Questionnaire (SIBDQ) -Harvey Bradshaw Index (HBI) -Simple Clinical Colitis Activity Index (SCCAI)	—

Countries

Germany

Contacts

Public ContactStefanie Kurka

Charité - Universitätsmedizin Berlin

stefanie.kurka@charite.de+49 30 450 529 397

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Apr 4, 2026