C00-C97 D00-D09 D10-D36 D37-D48 Z80
Conditions
Interventions
Group 1: Individuals with a diagnosis or suspected diagnosis of tumor predisposition. Collection of the initial status from the documentation of the board, supplemented if necessary by data from the H
Sponsors
Universitätsklinikum Augsburg; Medizinische Fakultät, Universität Augsburg
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: - Diagnosis or suspected diagnosis of a tumor predisposition syndrome - Inpatient treatment or outpatient presentation at the University Hospital Augsburg or one of the partner institutions - Written consent of the patient or the legal representative to participate in the study
Exclusion criteria
Exclusion criteria: - Patients or their legal representatives without sufficient German language skills
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - Clinical significance of the boards' work for the clinical management of individuals with suspected or confirmed genetic disorders - Disease progression of affected individuals depending on the implementation of recommendations - Disease-relevant characteristics of referred patients, referrer profile, questions, and recommendations | — |
Secondary
| Measure | Time frame |
|---|---|
| - Feasibility of recommendations - Significance of the boards for treating physicians - Role of the genetics board compared to tumor boards and molecular tumor boards in clinical care | — |
Countries
Germany
Contacts
Public ContactMonika Golas
Medizinische Fakultät | Humangenetik, Universität Augsburg, Universitätsklinikum Augsburg
Outcome results
None listed