Assessing crae and support needs of families with children and adolescents diagnosed with cancer predisposition syndromes

Assessing crae and support needs of families with children and adolescents diagnosed with cancer predisposition syndromes - KiTDS-Care

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00035594

Enrollment

Registered

2024-12-09

Start date

2025-05-01

Completion date

Unknown

Last updated

2026-01-12

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

cancer predisposition syndromes

Interventions

Group 1: Online-based survey (quantitative) of parents with a child with CPS regarding mental well-being, quality of life, and care situation (sample size: n = 90) Semi-structured interviews with n =

Eligibility

Sex/Gender

All

Age

No minimum to 18 Years

Inclusion criteria

Inclusion criteria: Confirmed diagnosis of CPS Sufficient language/German skills Written consent to participate

Exclusion criteria

Exclusion criteria: Excessive physical or psychological stress on the child or parents

Design outcomes

Primary

Measure	Time frame
systematic comprehensive analysis of the current care landscape, psychosocial stressors and support needs of families with a child with CPS	—

Secondary

Measure	Time frame
Derivation of recommendations for the psychosocial care of affected families based on the results of the analysis	—

Countries

Germany

Contacts

Public ContactMichaela Kuhlen

Universitätsklinikum Augsburg

Michaela.Kuhlen@uk-augsburg.de00821 400-9300

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026