Q20 Q21 Q22 Q23 Q24 Q26
Conditions
Interventions
Group 1: -Infants and toddlers aged 0 to 24 months with a congenital heart disease who have been hospitalised for at least 12 hours on an intermediate or general ward at DHZC or at the "Heart and Diab
Sponsors
Deutsches Herzzentrum der Charité
Eligibility
Sex/Gender
All
Age
No minimum to 18 Years
Inclusion criteria
Inclusion criteria: - age under 24 months on the day of inclusion - Main caregiver has good knowledge of written and spoken German - Hospitalisation on a paediatric cardiology intermediate or general ward for at least 12 hours
Exclusion criteria
Exclusion criteria: - Uncertain custody situation - Infant with end-of-life care during palliative care
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - Children's psychological, physical and social well-being measured using the Paediatric Quality of Life Questionnaire for Young Children (PedsQL). - Parents' satisfaction with FCC measured using the new EMPATHIC-30G | — |
Secondary
| Measure | Time frame |
|---|---|
| - Effects of medical and sociodemographic factors on the relationship between parent satisfaction with FCC and child well-being. | — |
Countries
Germany
Contacts
Public ContactHannah Ferentzi
Deutsches Herzzentrum der Charité
Outcome results
None listed