Patients with unclear disease and suspected rare disease
Conditions
Interventions
Group 1: Patients with unclear disease and suspected rare disease.
It is planned to enter personal details and medical data (e.g. age and gender, height and weight, previous illnesses, course of the i
Sponsors
Universitätsklinikum Hamburg-Eppendorf
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: All patients who have undergone the standardized procedure of the Department for Rare Diseases and have given their consent are to be included. Adults, children and adolescents living in Germany will be considered. Requests from abroad are not included in the database.
Exclusion criteria
Exclusion criteria: Requests from abroad are not included in the database.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The aim of the project is to prospectively collect the clinical data of participating patients with unclear disease and suspected rare disease in a structured form so that they are then available in pseudonymized form for specific questions. | — |
Secondary
| Measure | Time frame |
|---|---|
| The aim of the project is to prospectively collect the clinical data of participating patients with unclear disease and suspected rare disease in a structured form so that they are then available in pseudonymized form for specific questions. | — |
Countries
Germany
Contacts
Public ContactChristoph Schramm
Universitätsklinikum Hamburg-Eppendorf
Outcome results
None listed