D47
Conditions
Interventions
Group 1: Questionnaire study incl. semi-structured interviews
Survey of sporty active MPN patients
Sponsors
Universitätsmedizin Rostock
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: diagnosed MPN sufficient knowledge of German active in sports
Exclusion criteria
Exclusion criteria: non-consenting patients Failure to meet an inclusion criterion
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Adverse events during sports in patients with MPN (MPN patients are retrospectively questioned once about adverse events during sporting activities. We evaluate whether and, if so, during which sports AEs occurred) | — |
Secondary
| Measure | Time frame |
|---|---|
| - Training content/scope - Form of training: supervised vs. unsupervised - Exercise of strength training (large machines, small machines, own body weight) - Use of online tools/apps during exercise - Monitoring of training (e.g. via smartwatches) - Fears of AEs during sport and conscious protective measures (e.g. sun cream, avoiding sports, lower intensity) - Taking advantage of exercise advice - Symptom burden (MPN-SAF) and quality of life | — |
Countries
Germany
Contacts
Public ContactSabine Felser
Universitätsmedizin Rostock
Outcome results
None listed