Understanding the implications of dystonia on affect, cognition, daily life, and social relationships

Understanding the implications of dystonia on affect, cognition, daily life, and social relationships - VIDA

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00034950

Enrollment

300

Registered

2026-06-10

Start date

2026-05-26

Completion date

Unknown

Last updated

2026-06-22

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G24

Interventions

Group 1: Individuals with diagnosed or suspected dystonia participate in a one-time anonymous online survey. The survey includes questions on sociodemographic characteristics, disease-related factors,

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Diagnosed dystonia or suspected dystonia Capacity to consent and informed consent Age = 18 years Sufficient German language skills Treatment in Germany

Exclusion criteria

Exclusion criteria: No diagnosed or suspected dystonia Age < 18 years Lack of capacity to consent or lack of informed consent Insufficient German language skills No treatment in Germany

Design outcomes

Primary

Measure	Time frame
Subjectively reported cognitive and affective symptoms in individuals with dystonia assessed via structured self-report questionnaires.	—

Secondary

Measure	Time frame
Social relationships and social participation; illness-related changes in self-image and social discomfort; activities of daily living; sleep and fatigue; perceived disease burden; experiences with healthcare professionals; perceived symptom triggers and treatment experiences.	—

Countries

Germany

Contacts

Public ContactCatherine Widmann

Klinik für Parkinson-, Schlaf- und Bewegungsstörung, Universtitätsklinikum Bonn

catherine.widmann@ukbonn.de+49 0228 287 13093

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jun 29, 2026