Evaluation study of the workshop for adults siblings of severe/chronically-ill, disabled or deceased siblings

Evaluation study of the workshop for adults siblings of severe/chronically-ill, disabled or deceased siblings - workshop for adult siblings

Status

Recruiting

Phases

Unknown

Study type

Interventional

Source

DRKS

Registry ID

DRKS00034773

Enrollment

Registered

2024-08-20

Start date

2024-05-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Healthy siblings of people with a serious paediatric illness (e.g. paediatric cancer) or disability, orphaned siblings

Interventions

Group 1: intervention group participated in workshop 1 (21.-23.06.2024), surveys at T0 (pre), T1 (post) and T2 (2-month-follow-up) Group 2: waitlist control group participates in workshop 2 (30.08.-01

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Healthy siblings of a person who has/had a serious or chronic illness (or has died from it) since/in childhood or healthy siblings of a person with a disability Good knowledge of German (at least B2), as the workshop will be held in German

Exclusion criteria

Exclusion criteria: Minor or lack of capacity to consent Moderate to severe cognitive impairment that would limit workshop participation Current pregnancy/breastfeeding Current psychotherapeutic treatment due to a mental disorder (whether participation in this group programme is appropriate at the current time will be clarified with the treating psychotherapist) Acute mourning phase

Design outcomes

Primary

Measure	Time frame
At T0/T1/T2: Questionnaire to record the retrospectively perceived burdens, resources and effects of siblings of persons with chronic illnesses and/or disabilities (FEBRA); sense of family coherence (FSOC) Also at T0: questions on socio-demographic and medical information, previous and current sibling relationship, previous and current level of care of the ill/disabled sibling(s), use of psychosocial services, knowledge of psychosocial services Also at T1: satisfaction with the workshop (ZUF-8); extent of subjective changes in behaviour, perceptions or emotions (BVB-2000, selected items: 2, 3, 4, 5, 10, 12, 14, 15, 16, 17)	—

Measure

Time frame

At T0/T1/T2: Questionnaire to record the retrospectively perceived burdens, resources and effects of siblings of persons with chronic illnesses and/or disabilities (FEBRA); sense of family coherence (FSOC) Also at T0: questions on socio-demographic and medical information, previous and current sibling relationship, previous and current level of care of the ill/disabled sibling(s), use of psychosocial services, knowledge of psychosocial services Also at T1: satisfaction with the workshop (ZUF-8); extent of subjective changes in behaviour, perceptions or emotions (BVB-2000, selected items: 2, 3, 4, 5, 10, 12, 14, 15, 16, 17)

—

Secondary

Measure	Time frame
Psychosocial services/providers that are already known to the target group	—

Countries

Germany

Contacts

Public ContactKristina Herzog

Elternhilfe für krebskranke Kinder e.V. Leipzig

herzog@elternhilfe-leipzig.de+49 176 42712863

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026