Severe and incurable disease, with an expected lifespan of 12-24 months
Conditions
Interventions
Group 1: One-armed, social intervention "A buddy in the last year of life"
I. People with serious illnesses who are supported by a "buddy"
II. relatives and carers who are (co-) supported by a buddy
Sponsors
Zentrum für Palliativmedizin, Uniklinik Köln
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Participation in the "Buddy" social programme (people with serious illnesses and relatives), employed and volunteer buddies - Adults capable of giving consent - Availability of written consent to participate in the study - Sufficient knowledge of German
Exclusion criteria
Exclusion criteria: - Person refuses to participate / is not able to give consent - No consent / or consent withdrawn later
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| I.People with serious illnesses who are supported by a "buddy" -Quality of life (mental and psychological health; EuroQol Group visual analogue scale EQ VAS); Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months - Palliative care needs (Integrated Palliative Care Outcome Scale, IPOS); Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months - Care trajectory (e.g., number of hospitalisations); Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months - Satisfaction with the buddy care; Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months, interview at the beginning and end of buddy support II. relatives and carers who are (co-) supported by a buddy - Relatives and caregiver burden (Zarit-Burden Interview -7, ZBI-7); Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months - Satisfaction with the buddy care; Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months, interview at the beginning and end of buddy support III. employed and volunteer buddies - Barriers and facilitators to implementation, focus groups | — |
Secondary
| Measure | Time frame |
|---|---|
| I. People with serious illnesses who are supported by a "buddy" - Achievement of goals Buddy care, project documents II. relatives and carers who are (co-) supported by a buddy - days of sick leave for relatives , Questionnaire at several points in time: T0 at the beginning, T1 after three months, T2 after six months, T3 after nine months, T4 after twelve months, - the amount of time spent by the buddies, project documents | — |
Countries
Germany
Contacts
Public ContactJulia Strupp
Zentrum für Palliativmedizin, Uniklinik Köln
Outcome results
None listed