G20 G23.1 G23.2 G23.8
Conditions
Interventions
Group 1: Visualisation of characteristics, resources and challenges in health care using Community Mapping, 2 groups of 5-10 people with Parkinson’s disease (PD) or health care professionals (05.2024
approx. 300 providers of therapeutic services, approx. 300 medical/psychotherapeutic practices, approx. 200 outpatient care services, approx. 300 inpatient care facilities, approx. 170 pharmacies, app
Sponsors
HAWK Hildesheim/Holzminden/Göttingen
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Understand and speak German - Arm1: Affected persons: living in southern Lower Saxony (districts of Goslar, Göttingen, Hildesheim, Holzminden, Northeim), confirmed diagnosis of Parkinson's disease, able to consent to participation themselves, time to attend several group meetings in Hildesheim, interest in active, participatory collaboration Carers: professionally active in the health-related care of people with Parkinson's disease in southern Lower Saxony (districts of Goslar, Göttingen, Hildesheim, Holzminden, Northeim), time for participation in 2 to 3 group meetings in Hildesheim, interest in active, participatory cooperation - Arm2: resident in southern Lower Saxony (district of Goslar, Göttingen, Hildesheim, Holzminden, Northeim), confirmed Parkinson's disease or relative/associate of a person with a confirmed diagnosis, time to attend 3 meetings over 6 months in presence at the Göttingen Health Campus, own mobile phone with camera, willingness to use a free app for photo transmission and communication with the project team - Arm3: occupation in the health-related care of people with Parkinson's disease in southern Lower Saxony (districts of Goslar, Göttingen, Hildesheim, Holzminden, Northeim) - Arm 4: Affected person & relative/associate: resident in southern Lower Saxony (district of Goslar, Göttingen, Hildesheim, Holzminden, Northeim), confirmed Parkinson's disease or relative of a person with a confirmed diagnosis, able to consent to participation themselves healthcare professionals: professional involvement in healthcare of people with Parkinson's disease in southern Lower Saxony (districts of Goslar, Göttingen, Hildesheim, Holzminden, Northeim) - Arm 5: Affected persons and/or relatives who participated in arms 1 or 2
Exclusion criteria
Exclusion criteria: none
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| ParkNetz is the first project to identify needs and requirements for a cross-sectional integrated care network for people with Parkinson's Disease (PD) in southern Lower Saxony (districts of Goslar, Göttingen, Hildesheim, Holzminden, Northeim). The development of a requirements profile and network concept should serve as the basis for the establishment of the regional network. Central question: How can a cross-sectional, interprofessional health-related care network be provided for people with PD in southern Lower Saxony? | — |
Secondary
| Measure | Time frame |
|---|---|
| - How is health-related care currently provided for people with PD in southern Lower Saxony? (analysis of regional healthcare provision) - What are the needs of those affected, their relatives and various healthcare stakeholders for cross-sectional integrated care? (needs analysis) - Which core elements need to be implemented for cross-sectional integrated networking in southern Lower Saxony? (concept development for a network) - What potential can digital services offer here? (potential analysis) | — |
Countries
Germany
Contacts
Public ContactHendrike Frieg
HAWK Hildesheim/Holzminden/Göttingen
Outcome results
None listed