The understanding of end-of-life dignity in palliative care: has it recently changed?

The understanding of end-of-life dignity in palliative care: has it recently changed? - Dignity until the end - has it changed?

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00033930

Enrollment

Registered

2024-04-17

Start date

2024-04-24

Completion date

Unknown

Last updated

2026-06-01

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

end-of-life dignity, palliative cancer patients

Interventions

Group 1: palliative cancer patients

one-time survey using questionnaires (understanding of dignity, relevance of areas of dignity, PHQ-4, distress-thermometer, PDI-G, sociodemographic data, questions about the SARS-CoV-2 pandemic)

duration approx. 15-20 minutes to capture the understanding of end-of-life dignity and other variables. Group 2: relatives of palliative cancer patients, one-time survey using questionnaires (understa

duration approx. 15-20 minutes to capture the understanding of end-of-life dignity and other variables. Group 3: hospice staff/palliative care unit staff, one-time survey using questionnaires (underst

duration approx. 15-20 minutes to capture the understanding of end-of-life dignity and other variables.

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: patients: - the presence of advanced cancer in the context of palliative care - Consent of the patient to participate in the study - Sufficient knowledge of German - Capacity of the patient to give informed consent Relatives and staff: - age greater than/equal to 18 - Sufficient knowledge of German - Ability to give consent - Consent to participate

Exclusion criteria

Exclusion criteria: patients: - Expected massive deterioration in the patient's state of health/cognitive abilities - Insufficient knowledge of German - Lack of capacity to consent (legal guardianship) - Dementia or delirium or states of consciousness similar to dementia or delirium - Other cognitive symptoms that restrict the ability to give consent (e.g. increased fatigue) - Distress-Score > 8 Relatives and staff: - Insufficient knowledge of German - No capacity to give consent

Design outcomes

Primary

Measure	Time frame
understanding of end-of-life dignity assessed using a questionnaire specifically developed for the study based on the dignity model by Chochinov (2002) as well as the assessment of the relevance of different areas of dignity (using a likertscale) at one measuring point.	—

Secondary

Measure	Time frame
communication about dignity, dying and death; dignity-related distress; fear of dying and death; anxiety an depression; experiences during the SARS-CoV-2 pandemic; current distress	—

Countries

Germany

Contacts

Public ContactAlina Senßfelder

Philipps-Universität Marburg

alina.senssfelder@uni-marburg.de00496421-23631

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Jun 11, 2026