Non-kin caregivers of patients suffering from a malignant or non-malignant life-limiting chronic disease
Conditions
Interventions
Group 1: Non-kin caregiver survey using:
(1) online questionnaires and/or
(2) one-time qualitative in-depth interviews on caregivers’ experiences, contributions to end-of-life care, and support needs.
14-item Benefits of Being a Caregiver Scale
20-item Family Inventory of Needs
9-item Positive Mental Health Scale). Socio-demographic and caregiving-related data will provide further background information on non-kin caregiver characteristics. Using items 11, 13, 21, 22, 27–34,
Sponsors
Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin / Universitätklinikum Erlangen, Palliativmedizinische Abteilung
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Non-kin caregivers providing care at least weekly for at least 4 hours per week, as unpaid, non-contractual, voluntary work outside of a professional or formal framework to a care-recipients who must be suffering from a malignant or non-malignant life-limiting chronic disease
Exclusion criteria
Exclusion criteria: cognitive impairment such as dementia; signiticant emotional distress during interview; withdrawl of consent to participate
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| construction of a broad conceptual framework of non-kin caregiving | — |
Secondary
| Measure | Time frame |
|---|---|
| observation of specific burdens, needs, and benefits of non-kin caregivers, the extent and type of care they provide | — |
Countries
Germany
Contacts
Public ContactFranziska A. Herbst
Medizinische Hochschule Hannover, Institut für Allgemeinmedizin und Palliativmedizin
Outcome results
None listed