Oral health of patients with epidermolysis bullosa compared to a healthy control group without - a retrospective study

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00033832

Enrollment

100

Registered

2024-10-11

Start date

2024-10-08

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q81

Interventions

Group 1: Patients with Epidermolysis bullosa who were treated at the Centre for Dental Medicine Medical Center-University of Freiburg in intubational anesthesia over the past 10 years (2014-2024) (fo

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Epidermolysis bullosa Q81 Patients treated at the Centre for Dental Medicine Medical Center-University of Freiburg from 2014 to 2024

Exclusion criteria

Exclusion criteria: Kindler epidermolysis bullosa

Design outcomes

Primary

Measure	Time frame
Dental findings (clinical and radiographic): All existing and missing teeth should be considered and existing restorations (fillings/crowns) and carious lesions should be recorded. The DMF-T index should be calculated on the basis of these results. The DMF-T index is used internationally to measure the incidence and prevalence of caries. The teeth that are decayed, missing or filled are counted. The value can assume a maximum value of 28 in permanent dentition.	—

Measure

Time frame

Dental findings (clinical and radiographic): All existing and missing teeth should be considered and existing restorations (fillings/crowns) and carious lesions should be recorded. The DMF-T index should be calculated on the basis of these results. The DMF-T index is used internationally to measure the incidence and prevalence of caries. The teeth that are decayed, missing or filled are counted. The value can assume a maximum value of 28 in permanent dentition.

—

Secondary

Measure	Time frame
Retrospective data: - Medical history - age - sex - Treatment period - Recording of oral hygiene (categorization into good, medium, poor) - Further treatment (check-ups, prosthetic treatment, etc.)	—

Countries

Germany

Contacts

Public ContactFabian Cieplik

Klinik für Zahnerhaltungskunde und Parodontologie

fabian.cieplik@uniklinik-freiburg.de0049 0761 270-48850

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026