European register for rare vascular diseases

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00033512

Enrollment

5000

Registered

2024-01-29

Start date

2024-01-25

Completion date

Unknown

Last updated

2026-03-30

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

rare vascular diseases

Interventions

Group 1: The register on rare vascular diseases is intended to retrospectively collect and collate data already collected on patient care.

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Confirmed diagnosis of a rare vascular disease

Exclusion criteria

Exclusion criteria: Insufficient anonymization or possible identification of the individual due to demographic data and rarity of the diagnosis

Design outcomes

Primary

Measure	Time frame
Examination of the success of center-specific medical measures for diagnostics, therapy and aftercare. The survival rate, the risk of necessary re-interventions or recurrences (vascular tumors) are to be examined.	—

Countries

Austria, Belgium, Germany, Italy, Poland, Spain, Sweden, United Kingdom

Contacts

Public ContactPhilipp Erhart

Universitätsklinikum Heidelberg

studienzentrale.gefaesschirurgie@med.uni-heidelberg.de+49 6221566513

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Apr 4, 2026