myopathies
Conditions
Interventions
Group 1: All standardized, systematically collected interdisciplinary clinical and paraclinical data of patients with myopathies who present at the outpatient clinic for muscle diseases of the Charité
Sponsors
Universitätsmedizin Charité
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Female and male individuals over 18 years of age diagnosed with myopathy. The diagnosis can be made clinically, histopathologically and/or human genetically. Signed informed consent.
Exclusion criteria
Exclusion criteria: Age <18 years Lack of informed consent
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The aim of the current project is to record patients with myopathies using a standardized data set in a registry in which systematically collected interdisciplinary clinical and paraclinical data is brought together. This will create the prerequisites for a national or international data set for the use of AI-based analysis tools. | — |
Secondary
| Measure | Time frame |
|---|---|
| see above | — |
Countries
Germany
Contacts
Public ContactKatrin Hahn
Universitäsmedizin Charité
Outcome results
None listed