Hereditary Myopathies idiopathic inflammatory myopathies Hereditary neuropathies Inflammatory Neuropathies Neuromuscular transmission disorders
Conditions
Interventions
Group 1: Participants with different neuromuscular diseases are surveyed about sports and physical activities, data is correlated with information from patient recors. Subgroup from study population r
Sponsors
Universitätsmedizin Göttingen, Klinik für Neurologie
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Secure diagnosis of myopathy, neuropathy, neuromuscular transmission disorder - Able to give consent or legal guardian able to give consent
Exclusion criteria
Exclusion criteria: - patient with unclear neuromuscular disease without certain diagnosis - Unable to give consent (patient or legal guardian)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Assessment of nature and frequency of physical activity in patients with neuromuscular diseases and evaluation of the subjective effect. | — |
Secondary
| Measure | Time frame |
|---|---|
| Reconstruction of subjective perception of impact of sport and physical activity. Percentage of patients experiencing pain after movement and most common diagnosis with this experience. Detection of negative assumptions about physical activity (e.g. results in disease progression) and reasons for these beliefs. | — |
Countries
Germany
Contacts
Public ContactJana Zschüntzsch
Universitätsmedizin Göttingen
Outcome results
None listed