M08
Conditions
Interventions
Group 1: Patients with juvenile idiopathic arthritis (JIA) and their parents intervention group:
Information seminar takes place three months after announcement. First knowledge test before the infor
Sponsors
Universitätsklinikum Halle (Saale) Klinik für Innere Medizin II
Eligibility
Sex/Gender
All
Age
14 Years to No maximum
Inclusion criteria
Inclusion criteria: - ability to consent - confirmed diagnosis of JIA - patients (from the age of 14) - confident understanding of the German language - willingness to participate in the intervention and the associated survey - declaration of consent by the parents
Exclusion criteria
Exclusion criteria: - high disease activity or severe concomitant disease precluding seminar attendance - severe mental or cognitive impairment impeding knowledge transfer - refusal to participate in the study by the patient themselves or their parents
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary endpoint is the comparison of the mean knowledge change in the control group (after 3 months without intervention) with the mean change in knowledge in the intervention group (after 3 months with intervention). Disease knowledge will be assessed using a multiple-choice test with 20 questions as a score from 0 - 20. | — |
Secondary
| Measure | Time frame |
|---|---|
| Disease perception, state of health, compliance of parents or adolescents with regard to disease-specific prophylactic measures | — |
Countries
Germany
Contacts
Public ContactGernot Keyßer
Universitätsklinikum Halle (Saale) Klinik für Innere Medizin II
Outcome results
None listed