Self-Management, Solid Organ Transplant (Chronic Disease) Z94
Conditions
Interventions
Group 1: Pilot implementation and evaluation of a newly developed support programme (intervention) on skin cancer prevention after solid organ transplantation for organ transplant recipients and their
Sponsors
Institut für Pflegewissenschaft, Medizinische Fakultät, Universität Freiburg
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Existing capacity to consent (maturity); Ability to speak, write and understand German; Belong to one of the following two groups: organ transplant recipient or relative of an organ transplant recipient; Organ transplant recipients with stable health condition; Technical equipment and skills available to participate in the online parts of the intervention;
Exclusion criteria
Exclusion criteria: Organ transplant recipients undergoing inpatient treatment; Individuals (organ transplant recipients/relatives) involved in the intervention development process
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Feasibility and acceptability of the intervention: Indicators of the feasibility of an intervention are aspects related to material and human resources, contextual characteristics and the way in which the intervention is implemented (Sidani & Braden, 2021). The acceptability of the intervention reflects the participants' attitude towards the intervention and the extent to which they consider it appropriate, based on expected or experienced cognitive and emotional reactions (Sekhon et al., 2017; Sidani & Braden, 2021). The project presented here aims to retrospectively determine satisfaction with the support programme as an aspect of acceptance. Data is collected using a self-developed online questionnaire and field notes. The online questionnaire focusses on different sections of the intervention (A-E) and is divided accordingly into three parts, which are distributed at different times during the intervention phase: Parts 1 and 2 are given out during the intervention phase after sections C and D of the intervention respectively. Part 3 of the questionnaire is distributed after the end of the intervention (section E). Structured and semi-structured field notes will be made during the ongoing intervention phase on the basis of open participant and non-participant observation in the sense of monitoring the intervention process (Sidani & Braden, 2021). Three field note forms were developed for this purpose, focussing on the aspects of material resources, operational intervention fidelity and contextual features during the intervention process. Field notes are written by representatives of the research group. | — |
Secondary
| Measure | Time frame |
|---|---|
| Effect of the intervention on self-management competence areas and sun habits/sun protection behaviour: The impact of the intervention on self-management competences will be measured using the German version of the "Health Education Impact Questionnaire (HeiQ)" (Osborne et al., 2007). The impact of the intervention on sun habits and sun protection behaviour will be measured using the German version of the "Sun Exposure and Protection Index (SEPI)" (Detert et al., 2015). Both questionnaires are distributed as an online version once before and once after the intervention (pre-post). | — |
Countries
Germany
Contacts
Public ContactAnne Rebafka
Institut für Pflegewissenschaft, Medizinische Fakultät, Universität Freiburg
Outcome results
None listed