Quality of care in patients with Parkinson's syndromes in the Rhine-Neckar metropolitan region - A cross-sectional study from the perspective of patients and relatives

Quality of care in patients with Parkinson's syndromes in the Rhine-Neckar metropolitan region - A cross-sectional study from the perspective of patients and relatives - PNRN+ Evaluation

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00032733

Enrollment

335

Registered

2023-09-26

Start date

2023-10-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G20

Interventions

Group 1: Patients with the Idiopathic Parkinson's Disease (IPD) from the Rhine-Neckar region are asked once about their general health status using the WHODAS 2.0, about their disease-specific quality

Eligibility

Sex/Gender

All

Age

30 Years to No maximum

Inclusion criteria

Inclusion criteria: - Patients with a clinical diagnosis of idiopathic Parkinson's disease - Good knowledge of the German language to answer the questionnaires - Able and willing to give consent

Exclusion criteria

Exclusion criteria: - Another cognition-impairing disease present - Refusal or inability to participate in the study - Other difficulties regarding understanding and communicating that hinder answering the questionnaire

Design outcomes

Primary

Measure	Time frame
The objectives of the study are to record the health status (WHODAS 2.0), the disease-specific quality of life (PDQ-39) and the utilisation of medical and non-medical healthcare services (FIMA). The survey takes place at a single point in time (explorative cross-sectional study). The survey extends over a period of 6 to 8 weeks.	—

Secondary

Measure	Time frame
Another aim of the study is to survey the Caregiver Burden (PDCB) of relatives to IPD patients. The relatives are interviewed during the same period (at the same time as the patients).	—

Countries

Germany

Contacts

Public ContactAndreas Becker

SRH-Kurpfalzkrankenhaus Heidelberg

andreas.becker@srh.de+49 6221 88 4022

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026