Barriers, concerns and feasibility options of data-based health care for people with intellectual disabilities (MmgB) in Germany
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Expert interviews: - Care of MmgB (e.g. general practitioners, MZEB director; n=4), analysis of routine data (methodologist; n=2), ethics/data safety (e.g. Data Protection Officer, Member of the Ethics Committee; n=2), Representatives of routine data organisations (GKV, KV; n=2), Interestgroup of MmgB (e.g. disabled persons' representative, n=2). - Positive informed consent for study participation has been obtained. Delphi survey: - Experts from the health care sector and health care research (e.g. BÄK, DKG; DKI, PMV research group). - Positive informed consent for study participation has been obtained.
Exclusion criteria
Exclusion criteria: People with mental disabilities Not speaking German
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Gathering barriers and concerns of data-based health care for people with intellectual disabilities (MmgB) in Germany. | — |
Secondary
| Measure | Time frame |
|---|---|
| Feasibility options of data-based health care for MmgB in Germany in form of a recommendation for action, whereby the results are exclusively indicative due to the theoretical sample. | — |
Countries
Germany
Contacts
Institut für Medizinsoziologie, Versorgungsforschung und Rehabilitationswissenschaft (IMVR) der Humanwissenschaftlichen Fakultät und der Medizinischen Fakultät der Universität zu Köln