Care recipients with chronical conditions and their caregivers
Conditions
Interventions
Group 1: Intervention group:
Informal caregivers together with the care recipient (if possible) are advised with the CoPlan method from trained care counsellors of the care recipient’s long-term care
Sponsors
Robert Bosch Gesellschaft für medizinische Forschung mbH
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: In the subjective evaluation of the current care situation at least one of the following three criteria (a to c) must be met: a) A pressing wish to change the current care situation. b) Care provision for the care recipient is often difficult. c) The caregiver has often difficulties to cope with the current situation. Caregiver: - Sufficient German language skills - Spending at least 10.5 hours per week (on at least two days of the week) for care, supervision and housekeeping Care recipient: - 18 years or older - Care level 1-5 (according to the German long-term care insurance) Inclusion criteria for the optional participation of the care recipient in the study and evaluation: - ability to give an informed consent - sufficient cognition and physical capacity to participate in the consultation and evaluation - sufficient German language skills
Exclusion criteria
Exclusion criteria: Caregiver: - is currently in psychiatric/ psychotherapeutic treatment OR reports significant impairment of everyday life due to acute mental disorder - participates in another intervention study Care recipient: - requires palliative care or has a terminal illness with a life expectancy of less than 6 months - lives in a nursing home - planned move into a nursing home within the next 3 months
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of informal care (QiC) as the total score of the dimensions (a) exemplary care behaviour with items from existing exemplary care scales (Dooley et al. 2007, McClendon & Smith, 2013) and (b) inadequate care behaviour using a questionnaire from a previous study (Pfeiffer et al. 2021, Schulz et al. in preparation) plus some additional items. Assessed pre- and post-intervention (3 months after baseline). | — |
Secondary
| Measure | Time frame |
|---|---|
| • Patient reported quality of received care counselling and satisfaction • Exemplary care behaviour (QiC- subscale score) • Inadequate care behaviour (QiC- subscale score) • Ressources related to wellbeing (Psychosocial Resource Utilization Questionnaire for Family Caregivers, PRUQ mod., subscale Utilization of Resources Related to Wellbeing; Schulz et al., submitted). • Depressive symptoms (Center for Epidemiological Studies Depression Scale, CES-D, German version: Hautzinger et al., 2012) • Self-efficacy (Abbreviated Sense of Competence Questionnaire, SCQ, three subscales: „satisfaction with the care recipient“, "satisfaction with one's own performance", "consequences of involvement in care for the caregiver's life", Pendergrass et al., 2015), total score and scores of subscales • Exhaustion (The Gießen Subjective Complaints List, GBB, , subscale exhaustion, Brähler, Hinz, & Scheer, 2008) • Consequences of caregiving on one’s own schedule (Modified subscale “impact on schedule” of the Caregiver Reaction Assessment, Weyer-Wendl et al., 2016) • General life satisfaction (1-item) Care recipients (if participating in the evaluation): • Satisfaction with everyday life (12 items) • Depressive symptoms and anxiety (Patient Health Questionnaire, PHQ-4 , Löwe et al., 2010) • Loneliness (Loneliness Scale, UCLA, Russell, 1996) | — |
Countries
Germany
Contacts
Public ContactKlaus Pfeiffer
Robert Bosch Gesellschaft für medizinische Forschung mbH
Outcome results
None listed