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National Autopsy Registry

National Autopsy Registry - NAREG

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00032332
Enrollment
4000
Registered
2024-10-24
Start date
2025-02-01
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Autopsied deceased

Interventions

Group 1: The group of persons reviewed consists of autopsied deceased persons examined by the participating centers.

Sponsors

Uniklinik RWTH Aachen
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. deceased was autopsied in a participating center. 2. legal basis for autopsy was reviewed and documented at the center: a. The autopsy was performed as part of patient care in accordance with applicable state law. b. The autopsy was performed as part of a research project. There is a positive ethics vote that the autopsy may be performed and that the autopsy data may be transmitted to and processed by NAREG. 3. written documentation of the authorization or permission to perform the autopsy (of the deceased or the relatives according to § 4 Transplantation Act) is available in accordance with the legislation applicable to the autopsy in the respective federal state. 4. release of the company or official data protection officer for data processing in the register and the corresponding modules.

Exclusion criteria

Exclusion criteria: 1. absence/non-existence of a permission for dissection, if required (the respective legislation in force in the federal state applies here). 2. if applicable, lack of ethics vote for participation in the registry.

Design outcomes

Primary

MeasureTime frame
The aim of NAREG is to record as many autopsy cases as possible throughout Germany and then to serve as a central intermediary for data analysis and research inquiries. NAREG thereby forms the central and sustainable data platform, the information intermediary and thus the electronic backbone of the National Autopsy Network (NATON).

Secondary

MeasureTime frame
Recording the cause of death of autopsied decedents in a core data set.

Countries

Germany

Contacts

Public ContactPeter Boor

Uniklinik RWTH Aachen

Covid.Pathologie@ukaachen.de+49 49 241 80 80092

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026