PFAPA syndrome in childhood: factors related to the number of PFAPA-associated fever days.

PFAPA syndrome in childhood: factors related to the number of PFAPA-associated fever days. - PFAPA

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00032170

Enrollment

500

Registered

2023-07-03

Start date

2026-12-01

Completion date

Unknown

Last updated

2026-08-03

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

ORPHA:42642

Interventions

Group 1: German- and English-speaking family members of children diagnosed with PFAPA syndrome or children who meet the modified Marshall criteria are offered an electronic survey in six specific Face

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Parents of children with PFAPA syndrome Filling out an electronic questionnaire

Exclusion criteria

Exclusion criteria: n/a

Design outcomes

Primary

Measure	Time frame
A one-time parent-based survey will regression-analyze the distribution of the number of PFAPA-associated fever days and possible factors influencing the number.	—

Secondary

Measure	Time frame
Age at PFAPA diagnosis Time until PFAPA diagnosis Intervals between PFAPA episodes Febrile convulsions Parental impression of psychological distress Examination booklet remarks Distribution of symptoms Effect of warming or cooling measures	—

Countries

Germany

Contacts

Public ContactEkkehart Jenetzky

Gerhard-Kienle-Lehrstuhl, Fakultät für Gesundheit, Private Universität Witten/Herdecke gGmbH

ekkehart.jenetzky@uni-wh.de0049 2302 – 926 7730

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Aug 9, 2026