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Patient Journeys of children with chronic conditions: cross-indication analysis and recommendations for integrated care

Patient Journeys of children with chronic conditions: cross-indication analysis and recommendations for integrated care - PICAR

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00032139
Enrollment
50
Registered
2023-11-07
Start date
2023-09-25
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Children and Adolescents with chronic somatic and chronic mental illnesses

Interventions

Group 1: Qualitative Interviews with children aged 3-15 years with at least one of the following diagnoses: – Behavioural and emotional disorders with onset usually occurring in childhood and adolesce

Sponsors

Heinrich Heine Universität Düsseldorf, Universitätsklinikum Düsseldorf, Klinik für allgemeine Pädiatrie, Neonatologie und Kinderkardiologie
Lead Sponsor

Eligibility

Sex/Gender
All
Age
3 Years to 15 Years

Inclusion criteria

Inclusion criteria: Child, legal guardian of a child or professional involved in the care of children with at least one of the following diagnoses – Behavioural and emotional disorders with onset usually occurring in childhood and adolescence (ICD-10: F90-94, e. g. ADHD) – bronchial asthma (ICD-10: J45) – diabetes mellitus type 1 (ICD-10 E11) – developmental disorders (ICD-10: F80-84, e.g. autism) – cerebral palsy (ICD-10: G80)

Exclusion criteria

Exclusion criteria: Child: Lack of language skills or other problems (e.g. with concentration) to conduct an interview of approx. 20 min. in German language, none of the above mentioned diagnoses Legal guardian: no custody for the child in question, lack of language skills or other problems (e.g. with concentration) to conduct an interview of approx. 45 min in German language Professionals: No regular professional activity with the above mentioned groups of children, lack of language skills or other problems (e.g. with concentration) to conduct an interview of approx. 45 min in German language, employee of University Hospital Düsseldorf

Design outcomes

Primary

MeasureTime frame
Recommendations from an interdisciplinary perspective for more needs-based care for children with chronic diseases

Secondary

MeasureTime frame
Better alignment of care for children with chronic diseases with the needs of the families affected. Strengthen the quality of care and social participation of children with chronic diseases in the long term.

Countries

Germany

Contacts

Public ContactFreia De Bock

Universitätsklinikum Düsseldorf, Kinderklinik, Bereich Versorgungsforschung im Kindes- und Jugendalter

freia.debock@med.uni-duesseldorf.de+49 211 8108194

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026