VHL Registry and Biobank: Registration of Disease Manifestations, Course and Correlation with Biomarkers in VHL Patients

VHL Registry and Biobank: Registration of Disease Manifestations, Course and Correlation with Biomarkers in VHL Patients - VHL Registry and Biobank

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00031762

Enrollment

1000

Registered

2023-05-10

Start date

2021-05-01

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Q85.8

Interventions

Group 1: Patients with VHL disease

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: clinical VHL Diagnosis or detection of a pathogenic variant in VHL gene

Exclusion criteria

Exclusion criteria: none

Design outcomes

Primary

Measure	Time frame
Collection of clinical data, therapy and course of VHL patients after each screening	—

Secondary

Measure	Time frame
Identification of variables affecting the course of VHL disease	—

Countries

Germany

Contacts

Public ContactElke Neumann-Haefelin

Universitätsklinikum Freiburg

elke.neumann-haefelin@uniklinik-freiburg.de0049 761 270 35590

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026