Registry Study of the Provision of Assistive Devices, Medicines, and Other Healthcare Measures in an Inter-cohort Observation of Patients With ALS, SMA and Other Neurological Diseases.

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00031710

Enrollment

25000

Registered

2023-04-28

Start date

2015-10-30

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Amyotrophic Lateral sclerosis-ALS Neurofilament light chain-NfL APST Research G12.2

Interventions

Group 1: Non-interventional study-Observational study

Single arm. This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients wit

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Diagnosis of a chronic neurological disease

Exclusion criteria

Exclusion criteria: Lack of cooperation and unwillingness to store and share medical data collected in the registry study

Design outcomes

Primary

Measure	Time frame
The systematic recording of neurological treatment and its evaluation by patients via specific questionnaires	—

Countries

Germany

Contacts

Public ContactChristoph Münch

Charité – Universitätsmedizin Berlin

christoph.muench@charite.de+49 (0)30 450 560132

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026