Evaluation of innovative care concepts and the use of telecare in pediatric palliative care.

Evaluation of innovative care concepts and the use of telecare in pediatric palliative care. - TelePaepa

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00031579

Enrollment

100

Registered

2023-03-30

Start date

2021-12-13

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Z51.5

Interventions

Group 1: Patients and their legal guardians (usually the parents) who are cared for by a SAPV team for children and adolescents. Group 2: Employees of SAPV teams for children & adolescents (SAPV-KJ)

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: Parents and children/adolescents cared for by SAPV-KJ teams. Adolescents who are able to articulate themselves independently Team members working in SAPV-KJ teams

Exclusion criteria

Exclusion criteria: Children and adolescents who cannot articulate themselves

Design outcomes

Primary

Measure	Time frame
Analysis of the attitude of affected families and the SAPV-KJ team of the University Hospital Freiburg towards the use of telecare technologies are available. The attitudes of the families concerned are ascertained by means of targeted guideline-supported individual interviews. Some of the families interviewed have already had experience with video contact in the context of palliative care. Because families with children with life-shortening illnesses are in care for different lengths of time or for short periods, no fixed points in time are defined. Rather, parents are asked to indicate if and when they are willing to be interviewed. This flexible time approach takes into account the high vulnerability of those to be interviewed. The attitudes of SAPV-KJ team members will be surveyed before (as part of the needs assessment) and 8 months after the introduction of new telecare applications by means of 2 group discussions per survey time point, each with approximately 6 participants.	—

Measure

Time frame

Analysis of the attitude of affected families and the SAPV-KJ team of the University Hospital Freiburg towards the use of telecare technologies are available. The attitudes of the families concerned are ascertained by means of targeted guideline-supported individual interviews. Some of the families interviewed have already had experience with video contact in the context of palliative care. Because families with children with life-shortening illnesses are in care for different lengths of time or for short periods, no fixed points in time are defined. Rather, parents are asked to indicate if and when they are willing to be interviewed. This flexible time approach takes into account the high vulnerability of those to be interviewed. The attitudes of SAPV-KJ team members will be surveyed before (as part of the needs assessment) and 8 months after the introduction of new telecare applications by means of 2 group discussions per survey time point, each with approximately 6 participants.

—

Secondary

Measure	Time frame
- Obstacles and opportunities are defined - Identification of specific, target group-specific needs and offers - User-scenarios can be described	—

Countries

Germany

Contacts

Public ContactPetra Kiefer

Hochschule Furtwangen, Institut Mensch, Technik und Teilhabe

petra-kiefer@gmx.de+49 7723-920-2974

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026