Implementation and evaluation of the PART advisory board organisational structure to promote participatory research in the field of mental health

Implementation and evaluation of the PART advisory board organisational structure to promote participatory research in the field of mental health - PART

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00031241

Enrollment

Registered

2023-06-01

Start date

2023-02-01

Completion date

Unknown

Last updated

2026-01-12

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Participants are patients from forensic psychiatry (i.e. mentally ill offenders) and patients with dementia, as well as their relatives and researchers from both fields.

Interventions

Group 1: No intervention will be performed. A network structure will be established and evaluated.

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: For people with lived experiences (patients, relatives or other affected persons): - No moderate or severe dementia or comparable neurodegenerative diseases. - Able to give informed and independent consent - Direct or indirect experience with a specific neurodegenerative and/or mental illness or addiction problem and related to the commission of a criminal offence that led to placement in a forensic psychiatric ward - Interest in participatory research For professional experts : - Professors, (senior) physicians, psychologists, peer support workers, scientists working in the fields of dementia/forensics/neurodegenerative diseases - Experience in the field of patient involvement/participatory research not mandatory

Exclusion criteria

Exclusion criteria: For people with lived experiences (patients, relatives or other affected persons): - Moderate or severe dementia and comparable neurodegenerative diseases - Younger than 18 years of age - No direct or indirect experience with a specific neurodegenerative and/or mental illness or an addiction problem and, in connection therewith, the commission of a criminal offence which led to placement in a forensic psychiatric ward. - Unable to give informed and independent consent For professional experts : - Professors, (senior) physicians, psychologists, peer support workers, scientists not working in the fields of dementia/forensics/neurodegenerative diseases

Design outcomes

Primary

Measure	Time frame
Establishment and sustainable implementation of the structures for a patient advisory council network	—

Secondary

Measure	Time frame
Support of research projects in the field of forensics and dementia	—

Countries

Germany

Contacts

Public ContactBirgit Völlm

Universitätsmedizin Rostock, Klinik für Forensische Psychiatrie

birgit.voellm@med.uni-rostock.de+493814944800

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026