Quality of life of patients with multi-organ autoimmune disease and its relationship to patient-centred care - Qualitative preliminary study

Quality of life of patients with multi-organ autoimmune disease and its relationship to patient-centred care - Qualitative preliminary study - Qualy-GAIN (Qualitative preliminary study)

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00031117

Enrollment

Registered

2023-08-14

Start date

2023-08-15

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Patients with multi-organ autoimmune disease

Interventions

Group 1: Patients with multi-organ autoimmune disease At first, qualitative interviews are conducted to explore patient-related treatment preferences. These preferences provide the basis for developin

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: - patients with multi-organ autoimmune disease - patient registered in the GAIN registry - signed GAIN consent

Exclusion criteria

Exclusion criteria: not sufficient knowledge of the German language

Design outcomes

Primary

Measure	Time frame
Patients' treatment preferences	—

Countries

Germany

Contacts

Public ContactErik Farin-Glattacker

Universitätsklinikum Freiburg, Institut für Medizinische Biometrie und Statistik Sektion Versorgungsforschung und Rehabilitationsforschung

erik.farin@uniklinik-freiburg.de+49 761 270 74430

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026