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Health-related quality of life of children, adolescents, and adults after diagnosis of meningioma in childhood and adolescence

Health-related quality of life of children, adolescents, and adults after diagnosis of meningioma in childhood and adolescence - MEyLIFE

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00031002
Enrollment
71
Registered
2022-12-29
Start date
2023-01-02
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

D32.0

Interventions

Group 1: Children (=10 years of age), adolescents, and adults who developed meningioma in childhood and adolescence and received therapy and participated in the HIT-ENDO, KRANIOPHARYNGEOM 2000/2007, o

Sponsors

Klinikum Oldenburg AöR, Universitätsklinik für Kinder- und Jugendmedizin, Allgemeine Kinderheilkunde, Hämatologie und Onkologie, Studienzentrale Kraniopharyngeom
Lead Sponsor

Eligibility

Sex/Gender
All
Age
10 Years to No maximum

Inclusion criteria

Inclusion criteria: - Existing participation in the HIT-ENDO, KRANIOPHARYNGEOM 2000/2007, or KRANIOPHARYNGEOM Registry 2019 (26) studies - Diagnosis of meningioma before the age of 18 years - Histological or image morphological confirmation of the meningioma - Completed therapy for the meningioma or no therapy

Exclusion criteria

Exclusion criteria: - Current age < 10 years - Patients under current oncological therapy for meningioma

Design outcomes

Primary

MeasureTime frame
Health-related quality of life from the study population compared with a normative reference population.

Secondary

MeasureTime frame
Influences of different therapies, etiologies, histologies, WHO grades, tumor localizations, as well as time distance to diagnosis on health-related quality of life are investigated. In addition, the health-related quality of life of meningioma patients will be compared with craniopharyngeal patients.

Countries

Germany

Contacts

Public ContactHermann Müller

Klinikum Oldenburg AöR, Universitätsklinik für Kinder- und Jugendmedizin, Allgemeine Kinderheilkunde, Hämatologie und Onkologie, Studienzentrale Kraniopharyngeom

mueller.hermann@klinikum-oldenburg.de+49 441 403-213

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026