People with out-of-hospital mechanical ventilation and intensive care
Conditions
Interventions
Group 1: People with out-of-hospital mechanical ventilation and intensive care
Group 2: Nursing care services
Group 3: Health care provider for out-of-hospital mechanical ventilation
Sponsors
aQua – Institut für angewandte Qualitätsförderung und Forschung im Gesundheitswesen GmbH
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: People with invasive and non-invasive mechanical ventilation of any age who receive permanent out-of-hospital intensive care (home-based 1:1 care, residential group, "ventilation residential community", long-term care facilities). Medical and nursing care providers: Nursing care facilities that have - concluded a care contract according to § 132a Social Code Book V including a supplementary agreement according to § 4 of the relevant framework recommendation of the GKV-SV and who demonstrably care for the above-mentioned patient group, - provide out-of-hospital intensive care to patients based on § 37c subsection 2 Social Code Book V (or, before November 2020, based on § 37 subsection 2 Social Code Book V) or - have a care contract pursuant to § 132l, subsection 5 of the German Social Code Book V (or prior to May 2019 based on § 132a, subsection 1, sentence 5 of the German Social Code Book V). Outpatient medical, medical technology and therapeutic provider: Health care provider for out-of-hospital mechanical ventilation (e. g. Speech Therapists, Occupational Therapists, outpatient specialists and general practitioners, home care provider who care for people with out-of-hospital mechanical ventilation and intensive care.
Exclusion criteria
Exclusion criteria: People - who are not out-of-hospital ventilated - with out-of-hospital mechanical ventilation and with-out out-of-hospital intensive care Medical and nursing care providers: Nursing care facilities that - have not concluded a care contract according to § 132a Social Code Book V including a supplementary agreement according to § 4 of the relevant framework recommendation of the GKV-SV and who demonstrably care for the abovementioned patient group - do not provide out-of-hospital intensive care to patients on the basis of § 37c subsection 2 Social Code Book V (or, before November 2020, on the basis of § 37 subsection 2 Social Code Book V), - have no care contract pursuant to § 132l, subsection 5 of the German Social Code Book V (or prior to May 2019 based on § 132a, subsection 1, sentence 5 of the German Social Code Book V) or - do not provide care for invasively or non-invasively ventilated people. Outpatient medical, medical technology and therapeutic providers: - who do not care for people with out-of-hospital mechanical ventilation and intensive care
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome of the ATME project is to describe and analyse cross-sectional patient journeys and care structures of people with out-of-hospital mechanical ventilation and intensive care. Based on the knowledge gained, recommendation for action will be developed for further development of health care in line with needs and requirements. | — |
Secondary
| Measure | Time frame |
|---|---|
| - Epidemiological and socio-demographic description of the population - Description of the medical, rehabilitative-therapeutic and nursing care - Description of the needs and requirements of the population - Description of the current care structures with a focus on out-of-hospital care - Suitability of care structures to avoid long-term ventila-tion - Suitability of care structures to meet needs and re-quirements of the population - Suitability of care structures to reach the primary goals of GKV-IPReG - Analyse the impact of changes due to GKV-IPReG on care - Prioritization of problems in care and options to develop care structures | — |
Countries
Germany
Contacts
Public ContactGerald;A. Hakim Willms;Bayarassou
aQua – Institut für angewandte Qualitätsförderung und Forschung im Gesundheitswesen GmbH ;Deutsche Interdisziplinäre Gesellschaft für außerklinische Beatmung e.V.
Outcome results
None listed