G20
Conditions
Interventions
Group 1: Patients with Parkinson's disease will be asked once about their current state of care, their needs, wishes and barriers to (digital) self-management interventions.
Group 2: Relatives of pati
Sponsors
Philipps Universität Marburg
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: 1) Patients (m/f/d) with a clinical diagnosis of idiopathic Parkinson's syndrome (iPS) according to the currently valid international criteria (Postuma et al. 2015). - Severity Hoehn & Yahr stage I-IV - No cognitive impairment in the sense of dementia or similar. - Age: 18 years and older - Sufficient knowledge of German - Ability and willingness to give consent - Able to remember information, use it to make a decision and communicate decisions through speech 2) Relatives (m/f/d) of patients with IPS - Interested persons whose relatives are suffering from iPS - Carers as well as non-caring relatives - Age: 18 years and older - Good or sufficiently corrected vision and hearing ability - Sufficient knowledge of German
Exclusion criteria
Exclusion criteria: 1) Patients with IPS - and with other neurological diseases affecting cognition (e.g., atypical courses of Parkinson's disease, Alzheimer's disease, brain tumors, etc.). - dementia - Refusal or inability to participate in the study - Other comprehension and communication difficulties affecting point 6 of the inclusion criteria (e.g. language problems) 2) Relatives of patients with IPS. - Restrictions of vision, hearing and speech that are not sufficiently corrected - Insufficient knowledge of German
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Qualitative research. The aim of the study is a needs assessment of (digital) self-management interventions for patients with Parkinson's disease. | — |
Countries
Germany
Contacts
Public ContactMarlena van Munster
Philipps Universität Marburg
Outcome results
None listed