Previous inpatient treatment in early neurological rehabilitation with neurological rehabilitation diagnosis and presence of mechanical ventilation and/or tracheal cannula at discharge from neurological early rehabilitation
Conditions
Interventions
Group 1: The different primary and secondary endpoints are collected on the one hand in a telephone interview [current status] and on the other hand taken from the medical record of the discharging cl
Sponsors
Klinikum der Universität München, Campus Großhadern
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Age of majority, previous inpatient treatment in the neurological early rehabilitation of one of the partner hospitals with neurological rehabilitation diagnosis and presence of mechanical ventilation and/or tracheal cannula at the time of discharge from the clinic, discharge to out-of-hospital intensive care in the period 01.01.2019 - 30.06.2021
Exclusion criteria
Exclusion criteria: Palliative treatment/life expectancy according to medical assessment < 12 months at the time of discharge, weaning/decanulation medically ruled out (e.g. high cervical paraplegia, laryngeal tumour), pre-existing out-of-hospital intensive care prior to inpatient stay in one of the partner hospitals, progressive neuromuscular disease (e.g. muscular dystrophy, ALS).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Rate of patients who could be weaned off mechanical ventilation and/or tracheal cannula 6 months (and one year) after the start of treatment in out-of-hospital intensive care (and time of weaning after discharge from neurological early rehabilitation). | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcome measures (each collected by means of checklists or standardised scores, partly also at the time of discharge [according to file/medical record; marked with "(E)"], all at the time of the survey [telephone interview]): - TC and ventilator status and modalities (E). - Extent of care Accesses (e.g. PEG) (E) - mortality - Neurological status (GOS-E) (E) - Activities of daily living (ATL) (E) - Quality of life (QOL) - Relative burden - Care situation (use of AIP / living arrangements) - Satisfaction with the care situation - Complications/side effects - Information on health insurance (E) | — |
Countries
Germany
Contacts
Public ContactAndreas Bender
Neurologische KlinikKlinikum der Universität München
Outcome results
None listed