Challenges and needs of young people with cancer (AYA) 2-5 years after diagnosis in relation to “life-threat, dying and death”

Conditions

Cancer C76 C80

Mara Weiß, Carolin Wilharm, Michael Hallek, Raymond Voltz, Anne Pralong et al. (7 authors)

Supportive Care in Cancer2025-04-23

“The Most Important Thing is That You Are Not Left Alone”—A Qualitative Study of Challenges and Needs of Adolescents and Young Adults with Cancer

Carolin Wilharm, Anne Pralong, Mara Weiß, Saskia Blütgen, Michael Hallek et al. (8 authors)

Journal of Adolescent and Young Adult Oncology2024-05-213 citations

10.1089/jayao.2023.0158

Facing life-threat during youth: a qualitative study on challenges, coping, and needs among adolescents and young adults with cancer

Carolin Wilharm, Anne Pralong, Mara Weiß, Michael Hallek, Raymond Voltz et al. (7 authors)

Supportive Care in Cancer2024-02-227 citations

10.1007/s00520-024-08370-0

Interventions

Group 1: Interview with people 2-5 years after cancer diagnosis who were 18-39 years old at diagnosis and are currently in remission

Eligibility

Sex/Gender

All

Age

18 Years to 39 Years

Inclusion criteria

Inclusion criteria: - First diagnosis =2 years and =5 years before interview - Age at diagnosis =18 years and =39 years - In remission when questioned - Patient is informed about the study, consent is given

Exclusion criteria

Exclusion criteria: - Cognitive or language limitations and therefore unable to conduct the interview - Suspected or diagnosed cancer recurrence

Design outcomes

Primary

Measure	Time frame
Highlighting the challenges and needs of patients in order to improve care of young cancer patients	—

Secondary

Measure	Time frame
Identifying particularly stressful situations	—

Countries

Germany

Contacts

Public ContactArmin Tuchscherer

Universitätsklinikum Köln

armin.tuchscherer@uk-koeln.de0221 47898888

Outcome results

None listed