G20
Conditions
Interventions
Group 1: one-off survey in focus groups, each with up to 10 patients or relatives in the same stage of the disease
Sponsors
Deutschen Parkinson Vereinigung – Bundesverband – e.V. (dPV)
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Patients: Diagnosis of idiopathic Parkinson's disease Ability to actively participate in a focus group interview (FGI) with other patients for a maximum of 120 minutes (operationalized through self-assessment) German as mother tongue or very good knowledge of German Unrestricted or adequately corrected vision and hearing legal age Relatives: Interested people with at least one relative suffering from Parkinson's disease Good or sufficiently corrected vision and hearing German as mother tongue or very good knowledge of German legal age
Exclusion criteria
Exclusion criteria: Patients and relatives: Dementia symptoms (asked about the existence of a diagnosis) Visual, hearing and speaking impairments that are not adequately corrected Insufficient knowledge of German Minority age
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Detailed understanding concerning the information needs and requirement of Parkinson's patients and their relatives | — |
Countries
Germany
Contacts
Public ContactTheresia Krieger
Medizinische Psychologie | Neuropsychologie und Gender Studies & Centrum für Neuropsychologische Diagnostik und Intervention (CeNDI)Medizinische Fakultät und Uniklinik Köln, Universität zu Köln
Outcome results
None listed