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Biography work in the palliative care setting: an audiobook for posterity - implementation research regarding feasibility and effectiveness on coping and illness experience

Biography work in the palliative care setting: an audiobook for posterity - implementation research regarding feasibility and effectiveness on coping and illness experience

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
DRKS
Registry ID
DRKS00029252
Enrollment
100
Registered
2022-06-10
Start date
2022-07-15
Completion date
Unknown
Last updated
2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Psychological stress in incurable cancer patients.

Interventions

Group 1: Incurable ill patients with at least one minor child create a biographical audio book. Questionnaires will be collected at 3 time points (T1: before creating the audiobook
T2: after creating the audiobook, T3: after listening to their own audiobook): MQOL-R, PDI-G, Brief Measure of Generativity and Ego-Integrity, MDBF-A/B, PANAS. In addition, patients will be asked to p

Sponsors

Universitätsklinikum Heidelberg
Lead Sponsor

Eligibility

Sex/Gender
All
Age
18 Years to No maximum

Inclusion criteria

Inclusion criteria: - incurable cancer - Ability to give consent; age > 17 years - The study participants are parents of at least one minor child - The treatment of the primary disease must take place at the NCT in Heidelberg or at the UKHD, or the patients must live in the Rhine-Neckar district - German at native language level

Exclusion criteria

Exclusion criteria: - Inclusion criteria not met. - Mental impairment: Dementia, psychosis, major depression, diagnosed personality disorder.

Design outcomes

Primary

MeasureTime frame
Patients: MQOL-R, PDI-G, Brief Measure of Generativity and Ego-Integrity, MDBF-A/B, PANAS; semistandardized interviews Staff: ProQOL

Secondary

MeasureTime frame
Feasibility of 50 audio books during the project period, determination of: - Workload per audiobook - Willingness of patients to participate - Integration into the regular treatment/care processes: Questionnaire survey for employees of the regular care, e.g. physicians

Countries

Germany

Contacts

Public ContactAnja Greinacher

Universitätsklinikum HeidelbergPalliativmedizin

anja.greinacher@med.uni-heidelberg.de06221 56-35609

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026