social paediatric care needs
Conditions
Interventions
Group 1: One-time guided structured interviews with experts in social pediatric care, children and adolescents with social pediatric care needs, and parents of children and adolescents with social ped
Sponsors
Universität zu Lübeck Institut für Sozialmedizin
Eligibility
Sex/Gender
All
Age
16 Years to No maximum
Inclusion criteria
Inclusion criteria: - Experts working in social-paediatric care in Schleswig-Holstein - Chronically ill and/or impaired adolescents aged 16 or 17 who are registered in Schleswig-Holstein and also receive social-paediatric care there and who are mentally able to comment on the research topic. - Parents of chronically ill and/or impaired children who are resident in Schleswig-Holstein and whose children receive social-paediatric care there (in 2022). - Exception: Parents of chronically ill and/or impaired adolescents under 16 years of age who are resident in Schleswig-Holstein and whose child is on a waiting list for a socio-paediatric measure. - Written consent to the study
Exclusion criteria
Exclusion criteria: - Chronically ill and / or impaired adolescents younger than 16 years or not able to answer independently or mentally impaired or not living in Schleswig-Holstein and not undergoing socio-paediatric treatment. - Chronically ill and/or impaired young people who do not live in Schleswig-Holstein or are not receiving socio-paediatric treatment there. - Experts who do not work in social-paediatric care in Schleswig-Holstein - Insufficient knowledge of German - No written consent for the study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The objectives differ depending on the persons interviewed from the group of affected adolescents (1.), the parents of chronically ill children (2.) and the experts (3.) as well as their different perspectives and perceptions. Together, they provide the broadest possible picture of the socio-paediatric care situation and needs of children, adolescents and their families in Schleswig-Holstein in need of care, who are seriously chronically ill and seriously ill, in times of the COVID 19 pandemic. 1. 1. chronically ill adolescents - Care processes and structures during the COVID-19 pandemic - Changes in usual medical / therapeutic care - Changes in controls, preventive care and diagnostics - Reasons for changes - Corona measures experienced, how they were dealt with and their impact - Communication needs related to own disease and corona - Structural and organisational changes - Utilisation behaviour during the COVID 19 pandemic - Changes in utilisation behaviour and determinants thereof - Waiver of consultation - Additional medical or therapeutic service needs - barriers to access - Stresses and resources during the COVID-19 pandemic and the impact on social paediatric care - Impact on daily life - Impact on health status - Perceived reliefs and burdens - Impact of Corona protection measures on treatment success - Possible helpful and burdensome structures, processes and procedures in the environment - Lasting effects and needs - Wishes for their own medical / therapeutic care - Suggestions regarding the health care of children in general 2. parents of chronically ill children - Care processes and structures during the COVID 19 pandemic - Structural and organisational changes - Changes in treatments, controls, preventive care and diagnostics - Reasons for changes - Accessibility, waiting times, scope of care - Difference in dependence on service providers - Experienced corona measures, dealing with and effects of them - Communication needs in connection with the chi | — |
Secondary
| Measure | Time frame |
|---|---|
| By specifying a possible pandemic-related underuse or misuse, the study contributes to the need-based social paediatric care of children, adolescents and their families in Schleswig-Holstein in the future who are in need of care, are seriously chronically ill and are seriously ill. | — |
Countries
Germany
Contacts
Public ContactElke Peters
Universität zu LübeckInstitut für Sozialmedizin und Epidemiologie
Outcome results
None listed