G70.0
Conditions
Interventions
Group 1: Posts by patients with myasthenia gravis in Facebook groups are analysed for content category.
Sponsors
Charité Campus Charité Mitte
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: age = 18
Exclusion criteria
Exclusion criteria: none
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The main objective of this study is to categorise questions that users of Facebook groups ask other users about MG. For this purpose, the frequencies of question categories and subcategories are examined as a surrogate for unmet needs. | — |
Secondary
| Measure | Time frame |
|---|---|
| The secondary aim of this study is to compare and link the frequency of question categories with other parameters (such as author category, see below) posted in different Facebook groups in order to validate the relevance and authenticity of queries in relation to the broader MG population. For this, the queries posted in multiple Facebook groups will be examined for: - Author categories [diagnosed MG; previously undiagnosed/confirmed MG; unknown; patient's friend/family; professional (including physicians)] - User categories (users with one-time contributions, users with more frequent contributions and so-called "superusers"). - Gender. | — |
Countries
Germany
Contacts
Public ContactSophie Lehnerer
Charité Universitätsmedizin Berlin
Outcome results
None listed