C00-C97
Conditions
Interventions
Group 1: After being informed about the study and giving their consent, cancer counselors, as well as cancer patients and dependents that are making use of the psycho-oncological cancer counseling cen
Sponsors
Klinik für Psychosomatik und Psychotherapie und Tumorzentrum Freiburg - CCCF, Psychosoziale Krebsberatungsstelle
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Sufficient knowledge of German, patient/relative/counselor in the cancer counseling center
Exclusion criteria
Exclusion criteria: No consent, being emotionally agitated or highly distressed after counseling
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| In the course of the study the research partners will be asked to participate in one individual phone call, three workshops together with other patients, dependents and counselors of the psycho-oncological cancer-counseling center, as well as to conduct in two to three individual questionings. The latter will be conducted via video conference. The workshops will either take place online or on site at the psycho-social cancer counseling center in Freiburg. In total the research partners will participate on seven to eight occasions which concludes in a maximal time amount of 9 hours over a time span of 10 months. The appointments will be accompanied by employees of the University Hospital Freiburg, the Fraunhofer ISI Karlsruhe and/or the University Heilbronn. 1. Point of data collection (2023/ February till March: sociodemographic and if applicable disease related data, introduction of the project and opening questions: wishes, and needs, concerns and difficulties of the research partners regarding the app, evaluation of presented app content development (e.g. texts, phrasing), research partners suggestions for improvement (telephone interview, ca. 60 minutes) 2. Point of data collection (one to two appointments between March and October 2023): questions, opinions and suggestions for improvement regarding the technical development (e.g. app operation) (survey with qualitative interviews via video, ca. 10 to 30 minutes per appointment) 3. Point of data collection (2023/ June): evaluation of the technical development and the lay-scientists suggestions for improvement, ethical aspects (accessibility of the app for different demographic groups, conveyed implicit values, effects on the client-counselor-relationship) (workshop via video/ on site with qualitative interviews, ca. 2h) 4. Point of data collection (2023/ Beginning till end of September): Contribution of the app to the achievement of overall objectives of the health system (ZEIG-Tool) (Online-survey, that wi | — |
Secondary
| Measure | Time frame |
|---|---|
| Socio-demographic, if applicable clinically relevant data (first point of data collection, qualitative interviews) • Patients: sex, age, diagnose, date of the first diagnosis, metastasis, current treatment phase, prior treatment, planned treatment, reasons for former use of psycho-oncological support, distance of the home adress from the cancer counseling center, social environment • Dependents: sex, age, relationship to the person affected, diagnose, date of the first diagnosis, metastases, current treatment phase, prior treatment, planned treatment, reasons for former use of psycho-oncological support, distance of the home adress from the cancer counseling center, social environment • Counselors: sex, age, subject area, work experience in cancer counseling and in general Exploratory: relationship between socio-demographic/disease related data and statements concerning the scientific questions | — |
Countries
Germany
Contacts
Public ContactAlexander Wünsch
Klinik für Psychosomatik und Psychotherapie, Universitätsklinikum Freiburg
Outcome results
None listed