Demands and expectations of all actors in the distance caregiving arrangement (distance caregivers, care receivers, professional and informal persons of the local network and technology providers) will be analyzed.
Conditions
Interventions
Group 1: The study is not an interventional, but a qualitative (explorative) study. Therefore, instead of a comparison between groups, 60 guided interviews with actors of the distance caregiving arran
Sponsors
Charité - Universitätsmedizin Berlin
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: Inclusion criteria in general: 20 triads (one distance caregiver, one care receiver, one professional or informal persons of the local network) will be interviewed. - distance caregiver: anyone who cares for a care receiver from a self-defined distance (a family relationship is not required), older than 18 years (= of legal age in Germany), German native speaker, employed or unemployed and capable of self-report, not themselves dependent on care in accordance with the German Social Security Code (SGB) XI, and lives with or without dependent children. The distance to the care receiver is individually defined by the distance caregiver in an open question before inclusion in the study. In this way the inclusion criteria are tested, and the subjective definition of distance documented. - care receiver: anyone who is cared for by a distance caregiver, dependent on care according to the German Social Security Code (SGB) XI (recipients of a care allowance or non-cash or combined benefits), and capable of providing information (Mini-Mental-Status-Test, MMST = 18). Care receivers will be 50 years or older. - local network: key members will be defined by the distance caregiver and/or the care receiver. - representatives from application-oriented research organizations that design technological products will describe the potential and limits of technology applications in home care. All interviews as well as the structured observations will take place in compliance with the Charité's current regulations regarding the COVID-19 pandemic (ZVA on the procedure for clinical trials with study participants during the COVID-19 pandemic, version 14 of 12/03/2021).
Exclusion criteria
Exclusion criteria: Exclusion criteria in general: people living in the same household as, or in the immediate vicinity of a care receiver, or who can just drop in to visit the care receiver. Care receivers who live in care homes or assisted living homes are also excluded. Cognitive restrictions are a general exclusion criterion (MMST = 17) as is being a minor (< 18 years). The care receivers should be at least 50 years old. Distance caregivers who are interested in the study will be asked if the care receiver is capable of self-report. The first contact to the care recipient by the research team takes place via telephone. MMST will be conducted in order to scientifically confirm the subject’s ability to give information.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The study's main objective is to develop a model on distance caregiving that includes recommendations for all actors of the care arrangement (distance caregivers, care receivers, professional and informal persons of the local network and technology providers) to ensure that it is planned to function in a reliable and satisfactory way for all actors involved. | — |
Secondary
| Measure | Time frame |
|---|---|
| In the study ROAD we use a qualitative multi-method research design. For this reason, we cannot formulate hypotheses, but three study objectives. Study objective 1: The aim is to work out what demands (including attitudes, preferences and needs) the actors place on the distance caregiving arrangement. The following sub-questions will be considered: 1a) What are the actors' attitudes or preferences in relation to the distance caregiving arrangement? 1b) What is necessary in order for the distance caregiving arrangement to meet existing needs? 1c) What interdependencies exist between the actors (distance caregiver, care receiver, local network, and technology) in the care arrangement? 1d) What demands does the care arrangement place on technological support systems? 1e) What are the potentials and risks of existing technological support systems? Study objective 2: Based on the results of the first study phase (study objective 1), it will be determined what enables the distance caregiving arrangement to function reliably to ensure autonomy and safety for all actors. For this purpose, three scenarios will be developed, which differentiate according to the care receivers' care levels (care level 1 and care level 2 and 3 as well as care level 4 and 5) and the everyday involvement of the distance caregiver. These results are presented in three explanatory films. These are in turn evaluated by the triad of the care arrangement (distance caregiver, care receiver, and actors of the local network). The two sub-questions of this second study objective are: 2a) What scenarios can be imagined for the distance caregiving arrangement? 2b) How are these scenarios evaluated by the actors in the care arrangement? Study objective 3: As a last step, the final model on the distance caregiving arrangement will be developed, based on the first model version and the results of the evaluation of the explanatory films (study objective 2). Furthermore, recommendations for the sust | — |
Countries
Germany
Contacts
Public ContactFarina Bünning
Charité - Universitätsmedizin Berlin, Institut für Medizinische Soziologie und Rehabilitationswissenschaft
Outcome results
None listed