Counselling requests in myasthenia gravis: A retrospective quantitative and qualitative descriptive analysis of patient inquiries

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

DRKS

Registry ID

DRKS00028067

Enrollment

1705

Registered

2022-02-18

Start date

2021-09-15

Completion date

Unknown

Last updated

2025-04-07

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

G70.0

Interventions

Group 1: Retrospective evaluation of all consultation requests from patients with myasthenia gravis sent to the integrated Myasthenia Center Berlin (iMZ) and to the patient organization German Myasthe

Eligibility

Sex/Gender

All

Age

18 Years to No maximum

Inclusion criteria

Inclusion criteria: Written requests for advice to the iMZ the Charité from myasthenia gravis patients and written consultation requests to the DMG office during the defined investigation periods.

Exclusion criteria

Exclusion criteria: None.

Design outcomes

Primary

Measure	Time frame
Content and quantification of consultation requests to the iMZ Berlin and to the patient organization DMG (topics: deterioration of symptoms; side effects medicines; vaccinations and myasthenia; laboratory/blood collection; appointment requests)	—

Secondary

Measure	Time frame
Differences in the requests for advice to the iMZ Berlin and to the patient organization DMG	—

Countries

Germany

Contacts

Public ContactMaike Krause

Charité Universitätsmedizin Berlin

maike.krause@charite.de030-450539778

Outcome results

None listed

Source: DRKS (via WHO ICTRP) · Data processed: Feb 4, 2026