Patient Comfort, Health Literacy
Conditions
Interventions
Group 1: Patients will be asked about the outcome of the Patient Navigators (PLs) provided care.
Caregivers (physicians) will be asked about the outcome of the PLs activity.
PLs will be asked about th
Sponsors
Deutsche Gesellschaft für Muskelkranke e.V.
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Patients or relatives (e.g. parents with children), treating physicians who are involved in the PLP at the five centers as well as the patient navigators deployed by the DGM at the centers and their supervisors at the respective NMZ
Exclusion criteria
Exclusion criteria: Individuals who do not meet the above criterion
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Improvement of care quality in neuromuscular centers for people with muscle diseases and their families/relatives. | — |
Secondary
| Measure | Time frame |
|---|---|
| Improvement of health situation and increase of health literacy for people with muscle diseases and concurrent relief of practitioners from administrative and organisational tasks in the process of care for the affected individuals. | — |
Countries
Germany
Contacts
Public ContactChristine Straub
Klinik für Neuropädiatrie und MuskelerkrankungenZentrum für Kinder- und Jugendmedizin, Universitätsklinikum Freiburg
Outcome results
None listed