neuropalliative care diseases parkinson disease Spinal muscular atrophy and related syndromes Malignant neoplasm of brain Other degenerative diseases of basal ganglia Multiple sclerosis status epilepticus Secondary malignant neoplasm of brain and cerebral meninges Secondary malignant neoplasm of brain and cerebral meninges Huntington disease
Conditions
Interventions
Group 1: Intervention group: Teleconsil
Group 2: Control group: treatment as usual, without teleconsil
Sponsors
Krankenhaus Agatharied
Eligibility
Sex/Gender
All
Age
18 Years to No maximum
Inclusion criteria
Inclusion criteria: - Patients with an underlying neurological condition and patients with neurological symptoms and an underlying non-neurological condition - signed informed consent form - Care provided by an SAPV team or as a patient in a hospice
Exclusion criteria
Exclusion criteria: - <18 years - Pregnant women - Patients living outside of Bavaria
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Intraindividual improvement in symptom burden (iPOS) before and after teleconsil and compared with neurological patients in the unaccompanied control group. | — |
Secondary
| Measure | Time frame |
|---|---|
| Quantitative data: Quality of life applicability of telemedicine system/satisfaction with system patient and team; Technology affinity/readiness, team, consiliaries; team, consiliaries; Time pressure (team, consiliars); team attitude; team cooperation; team participation; telemedicine application -user friendliness team. Work organization teleconsil, consiliars; Utilization of medical and nursing services in group comparison. Induced utilization of medical resources in group comparison. Qualitative data: Job satisfaction in SAPV teams, patient and family satisfaction based on semi-structured qualitative interviews. | — |
Countries
Germany
Contacts
Public ContactChristiane Weck
Krankenhaus Agatharied - Abteilung für Neurologie
Outcome results
None listed